For a chance to truly make a difference please contact us to learn now you can get involved.
Click here to find out about the ways you can get involved,
   
  Some times the best way to remember, and grieve is talking. We offer family and freinds the place to share their stories, and read about others. Click here to find out about the ways you can get involved,
   
  The Luca John Foundation prides itself on gathering the latest information to be used by families, doctors and researchers. Learn More here.
   
 

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On November 10th 2006 our son Luca was born with a lethal form of skeletal dysplasia called short rib polydactyl syndrome. As a result he died an hour and a half after his birth in our arms. Shortly after this we setup The Luca John foundation, a New Jersey based 501c(3) charity. When Luca was diagnosed we looked to find a cure, a way, an option for his survival and we found none.

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There are two missions of this foundation:
  • Provide the medical community the funds it needs to increase the survivability and quality of life of children diagnosed with all forms of skeletal dysplasia.
  • To provide financial assistance for funeral expenses to families who have experienced a loss of an infant child at 12 months or younger, or a stillbirth.

read more about our Missions »

more news »
  • June 4, 2014
    Alex & Ani Fundraiser
    Princeton NJ Store
  • June 13, 2014
    8th Annual Golf Classic.
    49 Southfield Road
    West Windsor, New Jersey 08550
    609-799-0341
  • September 27, 2014
    2nd annual Colorado Golf Classic
    Highland Meadows Country Club
    Windsor, CO

more events »