Skeletal Dysplasia NJ, Skeletal Dysplasia Foundation New Jersey, Research of Skeletal Dysplasia, National Day of Mourning, The Luca John Foundation, Trenton NJ.


	For a chance to truly make a difference please contact us to learn now you can get involved. Click here to find out about the ways you can get involved,


	A simple donation is sometimes all it takes to make a big difference. Click here to find out about the ways you can get involved,


	Some times the best way to remember, and grieve is talking. We offer family and freinds the place to share their stories, and read about others. Click here to find out about the ways you can get involved,


	We are currently petitioning for November 10th to be a national mourning day for all children that have passed away. In recognition we ask people to wear a black ribbon with a silver lining to represent life’s gifts that arrive in the darkest of times. More info

On November 10th 2006 our son Luca was born with a lethal form of skeletal dysplasia called short rib polydactyl syndrome. As a result he died an hour and a half after his birth in our arms. Shortly after this we setup The Luca John foundation, a New Jersey based 501c(3) charity. When Luca was diagnosed we looked to find a cure, a way, an option for his survival and we found none.

There are two missions of this foundation:

To supply the research community with the funds it needs to improve the survivability and quality of life of children born with all forms of Skeletal Dysplasia.
To provide financial assistance for funeral expenses to families who have experienced a loss of an infant child at 12 months or younger, or a stillbirth.