Skeletal Dysplasia NJ, Skeletal Dysplasia Foundation New Jersey, Research of Skeletal Dysplasia, National Day of Mourning, The Luca John Foundation, Trenton NJ.


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On November 10th 2006 our son Luca was born with a lethal form of skeletal dysplasia called short rib polydactyl syndrome. As a result he died an hour and a half after his birth in our arms. Shortly after this we setup The Luca John foundation, a New Jersey based 501c(3) charity. When Luca was diagnosed we looked to find a cure, a way, an option for his survival and we found none.

There are two missions of this foundation:

Provide the medical community the funds it needs to increase the survivability and quality of life of children diagnosed with all forms of skeletal dysplasia.
To provide financial assistance for funeral expenses to families who have experienced a loss of an infant child at 12 months or younger, or a stillbirth.