For a chance to truly make a difference please contact us to learn now you can get involved.
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A simple donation is sometimes all it takes to make a big difference.
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  Some times the best way to remember, and grieve is talking. We offer family and freinds the place to share their stories, and read about others. Click here to find out about the ways you can get involved,
   
  We are currently petitioning for November 10th to be a national mourning day for all children that have passed away. In recognition we ask people to wear a black ribbon with a silver lining to represent life’s gifts that arrive in the darkest of times. More info
 

On November 10th 2006 our son Luca, after 90 minutes of life, forever fell asleep in our arms, a result of a lethal form of skeletal dysplasia called short rib polydactyl syndrome. When Luca was diagnosed we looked to find a cure, a way, an option for his survival and we found none. We did extensive research online, with genetic counselors and doctors from across the country, and we found that the gene code that controls bone growth, and causes all types of Skeletal Dysplasia has had limited research. To date only a small handful out of the over 300 types of Skeletal Dysplasia's have had their gene code mapped. The lack in that research led us to start The Luca John Foundation, a New Jersey based 501(c)(3) charity, created with a mission of finding a cure for skeletal dysplasia and supporting those families who’s children pass away all to young.

As a parent you try and protect your child from every harm, when you can not protect yours, you try to protect others.