For a chance to truly make a difference please contact us to learn now you can get involved.
Click here to find out about the ways you can get involved,
Some times the best way to remember, and grieve is talking. We offer family and freinds the place to share their stories, and read about others.
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The Luca John Foundation prides itself on gathering the latest information to be used by families, doctors and researchers.
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Maryland: Johns Hopkins
New York: NYU
Ohio: Children's Nationwide
Ohio: Children's Memorial, Columbus, OH
Delaware: DuPont Clinic
Washington: Seattle Children's (Chapter)
California: Cedar Sinai
Texas: Texas Children's Hospita
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NILMDTS
Angel Flights (Partner)
Agape Care Cradle (Partner)
SRPS Family Network
Kinder Mourn
Joes House
Lodging
What is Skeletal Dysplasia
International Skeletal Dysplasia Registry
Genetics Northern California
European Skeletal Dysplasia Network
Akron OH Children's Hospital
Greenberg Center for Skeletal Dysplasia
BCM Department of Molecular and Human Genetics
Genetic and Rare Conditions Site
Short Rib Family Network
Links to Skeletal Dysplasia Groups
Memorial Fingerprint Necklace
My Forever Child
La Bella Dame